International Health
Volume 2, Issue 2 , Pages 123-129 , June 2010

Community engagement on the Thai-Burmese border: rationale, experience and lessons learnt

  • Phaik Yeong Cheah

      Affiliations

    • Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand
    • Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, 10400 Thailand
    • Centre for Tropical Medicine, Nuffield Department of Clinical Medicine, University of Oxford, OX3 7LJ, United Kingdom
    • Corresponding Author InformationCorresponding author at: Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, 3rd Floor, 60th Anniversary Building, 420/6 Rajvithi Road, Bangkok, 10400 Thailand.
    • ,
  • Khin Maung Lwin

      Affiliations

    • Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand
    • ,
  • Lucy Phaiphun

      Affiliations

    • Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand
    • ,
  • Ladda Maelankiri

      Affiliations

    • Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand
    • ,
  • Michael Parker

      Affiliations

    • The Ethox Centre, Department of Public Health and Primary Health Care, University of Oxford, Badenoch Building, Oxford, OX3 7LF, United Kingdom
    • ,
  • Nicholas P. Day

      Affiliations

    • Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, 10400 Thailand
    • Centre for Tropical Medicine, Nuffield Department of Clinical Medicine, University of Oxford, OX3 7LJ, United Kingdom
    • ,
  • Nicholas J. White

      Affiliations

    • Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, 10400 Thailand
    • Centre for Tropical Medicine, Nuffield Department of Clinical Medicine, University of Oxford, OX3 7LJ, United Kingdom
    • ,
  • François Nosten

      Affiliations

    • Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand
    • Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, 10400 Thailand
    • Centre for Tropical Medicine, Nuffield Department of Clinical Medicine, University of Oxford, OX3 7LJ, United Kingdom

Received 25 September 2009 ,Revised 30 November 2009 ,Accepted 18 February 2010.

References 

  1. Morin SF, Morfit S, Maiorana A, Aramrattana A, Goicochea P, Mutsambi JM, et al. Building community partnerships: case studies of Community Advisory Boards at research sites in Peru, Zimbabwe, and Thailand. Clin Trials. 2008;5:147–156
  2. Cox LE, Rouff JR, Svendsen KH, Markowitz M, Abrams DI. Community advisory boards: their role in AIDS clinical trials. Terry Beirn community programs for clinical research on AIDS. Health Soc Work. 1998;23:290–297
  3. Weijer C, Goldsand G, Emanuel EJ. Protecting communities in research: current guidelines and limits of extrapolation. Nat genet. 1999;23:275–280
  4. Shubis K, Juma O, Sharifu R, Burgess B, Abdulla S. Challenges of establishing a Community Advisory Board (CAB) in a low-income, low-resource setting: experiences from Bagamoyo, Tanzania. Health Res Policy Syst. 2009;17:16
  5. Marsh V, Kamuya D, Rowa Y, Gikonyo C, Molyneux S. Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya. Soc Sci Med. 2008;67:721–733
  6. Vallely A, Shagi C, Kasindi S, Desmond N, Lees S, Chiduo B, et al. for the Microbicides Development Programme. The benefits of participatory methodologies to develop effective community dialogue in the context of a microbicide trial feasibility study in Mwanza, Tanzania. BMC Public Health. 2007;7:133
  7. Tindana PO, Singh JA, Tracy CS, Upshur REG, Daar AS, et al. Grand Challenges in Global Health: Community Engagement in Research in Developing Countries. PLoS Med. 2007;4:e273
  8. International Conference on Harmonisation of Technical Requirements for Registration of Pharmaceuticals for Human Use. ICH Harmonised Tripartite Guideline. Guideline for Good Clinical Practice E6(R1). 1996. http://www.ich.org/LOB/media/MEDIA482.pdf [accessed 1 July 2009].
  9. Glickman SW, McHutchison JG, Peterson ED, Cairns CB, Harrington RA, Califf RM, et al. Ethical and Scientific Implications of the Globalization of Clinical Research. N Engl J Med. 2009;360:816–823
  10. Emmanuel EJ, Wendler D, Killen J, Grady C. What makes clinical research in developing countries ethical?. J Infect Dis. 2004;189:930–937
  11. Chokshi DA, Thera MA, Parker M, Diakite M, Makani J, Kwiatkowski DP, et al. Valid consent for genomic epidemiology in developing countries. PLoS Med. 2007;4:e95
  12. Gikonyo C, Bejon P, Marsh V, Molyneux S. Taking social relationships seriously: Lessons learned from the consent practices of a vaccine trial on the Kenyan Coast. Soc Sci Med. 2008;67:708–720
  13. Quinn SC. Protecting Human Subjects: the Role of Community Advisory Boards. Am J Public Health. 2004;94:918–922
  14. Strauss RP, Sengupta S, Quinn SC, Goeppinger J, Spaulding C, Kegeles SM. The role of community advisory boards: involving communities in the informed consent process. Am J Public Health. 2001;91:1938–1943
  15. WHO. Guidelines for the treatment of malaria. Geneva: World Health Organization; 2006. www.who.int/malaria/docs/TreatmentGuidelines2006.pdf [accessed 1 July 2009].

PII: S1876-3413(10)00017-3

doi: 10.1016/j.inhe.2010.02.001

International Health
Volume 2, Issue 2 , Pages 123-129 , June 2010

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